Nut Shells

I had fun with Seraph's physical therapy today.  We mostly played with a hat.  Props are good!  She's getting more brave with her balance every day :)

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• Thank the heavens that Sexy Haqon is back from his super long business trip that went really well but it was crazy hard to deal with the kids all week without him and thank heavens for family who dropped by and called to keep me sane. (I always feel weird telling people that he's gonna be gone all week cuz it makes me feel more vulnerable when more people know he's not here....but then if I don't tell then I don't get the extra support which I really need. I haven't figured this one out yet)
• kindergarten orientation.
• kindergarten forms
• track sign-up for next year
• doctor appointments for said forms
• reschedule seraph's dental appointment
• Physical Therapy (play with Seraph who has extra big smiles today and call it a chore ;)
• skip Seraph's food therapy three days in a row
• figure out if I have a cold or allergies -- either way I can't breath!
• put up new calendar (yes, I do this 2 months at a time...it's just easier to organize my desk that way)
• fax those documents to that lady 
• call that office that'll keep me on hold for an hour
• buy new rechargeable batteries for my camera (somehow they always end up in the Wii remotes)
• sign tax papers
• fill out more papers
• fix my computer so it won't restart itself at in the middle of webinars I've waited all day to watch.
• cross my fingers that it's really fixed.
• play my turn at scrabble
• stop putting off writing on my blog just cuz I don't have a picture to post with it
• sleep
• get Delightful Finch's hair cut!!
• play text twist
• learn that my phone's screen turns a funky kind of plaid if I don't recharge it on time
• learn that my phone's plaid screen will go away if I charge the battery for 10 minutes AND then push the camera button.
• thank the heavens for google.
• see what Ms Baby Plan is up to today

My Bright, Bright Sun-Shiny Day...

[Pictured:  Beautiful Rabbit, Strong Bear, Delightful Finch

Seraph, and Angel-Roo]

The sun came out today just long enough to take everyone outside for some playtime!


We're applying for disability and medical aid for Seraph.  Her congenital heart defect (and complications) are on the the disabilities list.  The latest form asked me to compare Seraph's activities and abilities to that of a normal child her age.  ...like Angel?  My mom told me never to compare my twins.  Twins HATE that!!

Mom also taught me to be optimistic.

It was physically and emotionally draining to write out all of Seraph's challenges from birth to present.

I have learned soooo much over the past 2 years--warning signs, tips & tricks, precautions, etc.  I'm thinking of writing a book.  I love writing.  There are so many things that I wish someone had mentioned to me - things that could have helped Seraph not spend so much of her first years in the ICU if only I'd known them sooner.  Plus, maybe writing it will help me pull out of the funk that her disability forms have smashed me into.